What should I do with Mom at family gatherings?

Dear Grassflower: It’s been a year since Dad passed away and Mom was diagnosed with dementia…and I don’t think my sibs have processed it. My sister wants to do a big family gathering and has gotten all wrapped up in the symbolism of it being the first get-together since Dad died. As Mom’s caregiver, I can tell you she hates noise and crowds. She gets tired, confused, and generally doesn’t enjoy these big to-dos, and I can’t seem to get my sister to understand that. I don’t want to have to be blunt with her, but I will if I have to. Thoughts?

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Mom’s church asked me not to bring her anymore.

Mom’s faith has always been important to her; and until now, it’s been her one chance to get out and go somewhere she loves. But lately, she behaves inappropriately–loud talking, singing the wrong hymn, or just not making sense. She’s been asked to leave the service because her behavior is disruptive. It upsets her to get “thrown out”, and she often gets obsessed with some point raised in the sermon and won’t let go of it. Last Sunday, the preacher said “the Son of Man is coming at an hour you do not expect,” and Mom spent the whole afternoon trying to “get the house ready for him.” This can’t go on. What should I do?

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Mom’s getting too much social stimulation.

Mom is a social wallflower. When we did the initial tour of her dementia facility, it seemed calm and quiet, with sunny spots where she could quietly read or take a nap. But the staff insist on having her participate in social events, which she hates. It just gets her agitated and it takes forever to calm her down. The staff say agitation is to be expected, and they want to increase her meds to calm her down. I think the problem IS the staff. Why can’t they just leave her in her room to enjoy peace and quiet?

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